In moderate to severe dementia, pain shows as behaviour: grimacing, guarding, groaning, restlessness, resisting care or new aggression. Use a validated observational scale, such as PAINAD or MOBID-2, during movement and care rather than at rest, because pain often appears only when a joint is moved. Ask family and care staff what is usual for the person. Look for a cause, such as constipation, urinary retention, pressure areas, dental pain or an unrecognised fracture, before adding an analgesic. Reassess after any change to see whether it helped.
- Use an observational pain scale such as PAINAD or MOBID-2 during care and movement
- Ask family and carers what is normal behaviour for the person
- Look for treatable causes such as constipation, retention, pressure areas and dental pain
- Reassess after every analgesic change and stop what does not help
Why it matters
Unrecognised pain in dementia is often treated as agitation.
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